Meet Tessa, affectionately nicknamed “Voldemort,” an extraordinary young girl born without a nose due to a rare condition called complete congenital arhinia.
Her unique appearance tells a powerful story of resilience and challenges us to redefine what true uniqueness means.
Arhinia is a rare condition in which the nose does not develop in the womb, resulting in its absence at birth. This not only means that Tessa lacks a visible nose but also the olfactory system responsible for detecting smells.
Despite these challenges, Tessa embraces life with extraordinary energy, undeterred by her condition.
Her parents, Grainne and Nathan Evans, discovered their unborn daughter’s condition during a five-month ultrasound. Initially shocked, they decided to provide Tessa with the best care and support throughout her life.
After birth, Tessa required immediate medical attention, including a tracheostomy to aid her breathing. At just eleven months old, she also underwent cataract surgery.
When Tessa turned two, she underwent a significant procedure involving cosmetic surgery to implant prosthetics under her skin, paving the way for future nasal reconstruction. This surgery, which included bone and skin grafts, was carefully planned, taking into account her growth and facial development.
Living without a nose has led Tessa to adapt remarkably, breathing through her mouth and adjusting to the absence of smell. Her contagious joy and overflowing enthusiasm for life showcase her indomitable spirit, proving that true beauty goes beyond physical appearance.
Tessa’s story has touched hearts worldwide, inspiring many who face their own challenges. Her courage and resilience remind us that true beauty is found in the strength of the human spirit.
Tessa’s journey is a testament to how determination, bravery, and the unwavering support of loved ones can overcome any obstacle, offering hope and inspiration to all of us.
